It has been a little more than a year for Henley Johnson.
By Brad Mosher
It was time to celebrate Saturday for a two-year old resident of New England.
A little more than a year ago, she was in the middle of a battle for survival with chemotherapy virtually purging her immune system and a bone marrow transplant used to hopefully turn her life around.
Saturday, the local “miracle” was dressed in her Wonder Woman outfit to play on giant bounce houses inflated in Memorial Hall,
She had been born with a disorder that causes problems with bone marrow, in addition to the pancreas and liver. Shwachman-Diamond Syndrome also can cause skeletal problems.
Thanks to a young man in Germany, a match was found for Johnson and she soon had new hemoglobin, platelets and white blood cells.
The Johnson family had to wait a year before Henley could finally be cleared medically to go into the outside world, according to her mother, Jessica.
Henley’s first trip to the outside world recently was to Our Redeemer’s Lutheran Church in New England.
Her mother watched her daughter her visit to the outside world, even though the almost two-year old get sick afterwards, the child was able to fight off the sickness.
On Saturday, it was a chance to celebrate the improvement in Henley’s condition as well as thank the New England community for the help and support they have given the family.
“We had enough for 250 people and about half of it is gone,” Jessica said as the bounce houses in the Memorial Hall were deflated and the leftover food were packed away.
“We wanted to thank you (the community of New England) for all the support you have given us over almost two years… especially over the last year. We wanted to celebrate Henley’s second birthday and also her one-year transplant anniversary. It is a big milestone.
“It was a great time. We had a lot of fun,” the mother added.
(More in the next issue of The Herald)